I can extract side effects

After finishing the call, Wei Kang immediately began to search for the family members of the patient named Cao Yang.

Before meeting, he needs to have as general acquaintance as possible.

"An Mei, show me Cao Yang's information, the more detailed the better."

"OK."

Soon the computer automatically popped up web pages, all of which were news reports about Cao Yang.

Sure enough, this is an Internet celebrity.

It turned out that the father had a son with Menkes syndrome.

Because there is no way to seek medicine, Cao Yang, a high school graduate, made a crazy decision to treat his son suffering from a rare disease - building his own laboratory and making medicines by himself, which aroused great attention and became a smash hit.

The Menkes syndrome that Cao Yang's son suffers from is an extremely rare genetic disease, and there are only dozens of patients in China.

This disease is mostly seen in boys, and it was named after Menkes first reported it in 1962.

Due to the mutation of the ATP7A gene on the patient's X chromosome, the body cannot absorb copper ions, which seriously affects normal development, and women usually do not suffer from the disease because they have two X chromosomes.

Children with Menkes' disease will experience a series of symptoms such as growth retardation and deterioration of physiological functions because the body cannot absorb copper ions. In the end, until a certain organ of the body fails first, life ends, and the general life expectancy does not exceed 19 months.

Currently, the medical community has no effective cure for this rare disease.

Internationally, copper histidine supplementation can be used as one of the treatment methods.

Abroad, this simple compound usually exists in the form of hospital preparations.

Some doctors in China tried to promote histidine copper as a hospital preparation, but due to the overall tightening of hospital reagents, cumbersome administrative approval procedures, stricter requirements for children's injections, etc., they finally stopped.

Therefore, a common choice for domestic parents is to go to hospitals in Baodao and Yingguo to get medicine.

But obtaining medicine across borders is not a long-term solution after all, so Cao Yang embarked on the dangerous road of self-medication.

After untold hardships, he built a simple laboratory at home, taught himself medical knowledge, and finally succeeded in preparing medicines for the child, stabilizing the child's condition.

After this incident was reported by the media, it aroused heated discussion and attention across the country, and Cao Yang became an Internet celebrity.

Countless netizens were moved to tears by him and spontaneously paid attention to his self-pharmaceutical progress.

In addition, other parents of Menkes children are also keeping in touch with him, hoping to get more help.

After reading these news reports, Wei Kang had an idea in his mind.

The deeds of this parent are truly amazing, and this kind of perseverance is also moving.

Now that the other party has been able to make his own copper histidine preparation, the child's health has temporarily stabilized.

Presumably, the purpose of coming here this time is to persuade Sanqing to launch this generic drug, so that other children's family members can buy it after it goes on the market.

After all, he could only make his own medicine, Cao Yang, and could not sell it to other family members, otherwise it would be illegal.

However, the number of children with Menkes disease in China is too small, and copper histidine is a simple compound that has been around for a long time. No pharmaceutical company is willing to do such a thankless task of producing individual drugs for dozens of people.

Wei Kang decided to agree to the other party's request when they meet later.

Because Sanqing's generic drug department has always given priority to the development and production of generic drugs for rare diseases since its establishment.

So far, a series of generic drug product lines for rare diseases have also been formed.

Although they don’t make money, firstly, the technical content of generic drugs is not high, the investment in R\u0026D is limited, secondly, the cost of raw materials is not high, and thirdly, the sales volume is not high, so in general, even if they lose money, the loss is limited, which is a small hit. noisy.

Anyway, generic drugs for other common diseases are still selling well, enough to pay back the subsidy.

In short, the rare disease area is originally about losing money and making money, and its significance is greater than the existence of benefits.

Therefore, even adding a histidine copper preparation is nothing to Sanqing.

Dozens of people's annual needs, where can the loss go.

Just think of him as a charity.

As for the reasons that bother hospitals to manufacture in-hospital preparations, such factors as cumbersome administrative approval and strict manufacturing requirements do not exist for Sanqing.

Having made up his mind, Wei Kang got up and walked to the meeting room, to meet the father of the 'God of Medicine'.

To be honest, he is a little impressed that a person with a high school education can teach himself and make simple medicines.

This is also the main reason why he is willing to meet each other and offer help.

As soon as he entered the door, he saw a man of about thirty years old with a medium build and good appearance who stood up nervously.

"Hello, Cao Yang, it's a pleasure to meet you. I'm Wei Kang." Wei Kang smiled and held out his hand.

"Don't be nervous, I also read your deeds on the Internet just now, and I really admire you!"

"If you have any requirements, just ask, and I will do my best to help."

After a few words, the uneasiness on the man's face disappeared.

His demeanor returned to normal, and his expression became calm.

Cao Yang expressed his gratitude with a smile: "Mr. Wei, thank you very much for your interview. I am really touched that a busy person like you can take the time to meet with me. You are indeed a conscientious entrepreneur in the legend on the Internet. I did not come here in vain. Really It's worth it."

He pondered for a few seconds, and then spoke after deliberating his words. His voice was unhurried, clear, and calm.

"That's how it is. Since Mr. Wei already has a certain understanding, I'll make a long story short."

"I came this time to seek help from experts in Sanqing Medicine to treat my child thoroughly."

"You must have a certain understanding of Menkes syndrome. At present, there is no cure for this disease in China, and foreign countries can only buy some histidine copper hospital preparations. Not to mention it is very troublesome, and it is not a long-term solution."

"Although I can make my own medicine, firstly, this medicine can only alleviate the disease, but cannot cure it. Secondly, I have some patients with this disease. Their children also have this disease, and they also have nowhere to ask for medicine."

"It's impossible for them to make their own medicine like me. It's unrealistic, and the demands on their families are too high."

"Before I saw on the Internet that Sanqing tried its best to support patients with rare diseases, produced a lot of generic drugs, and saved many lives. Since then, I have this idea, but because the child's illness delayed a period of time."

"I was really excited when I saw the release of the SMA gene drug a few days ago, as if I saw a glimmer of hope that could completely cure patients with rare diseases, so I couldn't wait to come here."

"I also ask Mr. Wei to think about it and help our dozens of poor families of Menkes patients."

Speaking of the latter, Cao Yang clenched his hands and looked over expectantly.

Wei Kang smiled slightly: "Do you want Sanqing to develop copper histidine preparations? That's no problem."

"Copper histidine is a very simple compound, and the patent has expired long ago. Sanqing has already made great achievements in generic drugs for rare diseases, which is nothing to us."

"And the country also has preferential policies. As long as you take the green channel for rare diseases, I believe it will be on the market within three months. Dozens of you patients will soon be able to buy medicines through normal channels. You can even participate in the Clinically, so that there will be no shortage of medicines from the beginning to the end."

Cao Yang's eyes were complicated, and he shook his head slowly.

"Mr. Wei, you may have misunderstood me."

"Actually, I didn't come here to let Sanqing make copper histidine preparations. Although this medicine did alleviate the child's condition, it was not a complete solution."

"I know very well that the ultimate treatment for diseases caused by gene mutations must be gene therapy. At present, Sanqing is the most powerful pharmaceutical company in gene therapy in China that can develop clinically available gene drugs."

"So," he said sincerely, looking at Wei Kang eagerly, "this time I came to seek help from Sanqing's gene therapy experts to develop a gene drug that can completely cure Menkes' disease."

"This?" Wei Kang was completely shocked.